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there is so much more in life

There is so much more in life to be had from life if you think about chances instead of limitations.

This is a saying about Jasper, age 3, and his portrait is in a book called "The Upside of Down", a photo essay by Eva Snoijink made up of a collection of portraits of kids with Down's Syndrome, and 38 very large blowups of them are in the City Square currently; you can see the scale of the pedestals by the size of the kids under them... easily visible all up and down and across the street, and from all the trams and buses that pass by:

Down Syndrome is a congential disorder of chromosomes, which happens once in every 500 - 600 live births, and results in mental and physical retardation to varying degrees, and heart / kidney malformations. Kids who have this tend to age prematurely so they don't have very long lives. One of the Artistic Directors of a company I worked for in the States is caring for her niece who has Down's. I worked on a show she did called "Step Up" and it was a revelation to me about what can be accomplished in the right environment with encouragement and love... most of the kids had some form of disability but, with some, you could hardly tell as they got up there and performed, danced, made music and sang.

In the hostel we've just had a group traveling from a residence in the Midlands, England, maybe 24 and not all of them confined to wheelchairs at all, with 16 counselors / med staff to care for them. One girl taught me how to play Snap, a card game; three others talked about soccer in depth [over here it's football.] They had rooms next to mine and they were totally charming. One, named Becky, got up out of her wheelchair and made her way to where the bus dirvers sat, and plunked down between them, big wide smile. I was amazed, but Shirley told me "She does that all the time at home, just on trips we have to be more careful!"

What stereotypes we just have, making all these assumptions that aren't true at all.

This is Eva, age 6, whose parents talked about "...we had unknown quantities of love in store, hidden away. Eva opened the doors."

And Linde, age 3, talks about the problem we have when we think that everybody has to be perfect to be "normal", and what is normal anyway?

And what I also love is the fountains that come up out of the plaza, many turned off to protect the displays. Kids run in and out of them like they do with hydrants in the States, holding their noses so they don't get water in them:

Soyeah if you don't think about limitations, you can focus on chances instead.

So much more in life, from the family of a little boy age 3.


( 1 comment — Leave a comment )
(Deleted comment)
Jul. 11th, 2009 01:47 pm (UTC)
Beautiful, right along with the dedication of each one of their parents and caregivers. The exhibit is still in place there on the square, and I'm happy about that... lots of photos being taken of it, too :)
( 1 comment — Leave a comment )


kiota too late for the stars
Moonfire Marion Bridge / Brad

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